NATIONAL MEDIA ALERT


EMBARGOED: THURSDAY, APRIL 8, 2021

                                              

                                                                  

Launch of AUS-first digital platform to support
young Aussies living with incurable movement disorder

Innovative resource to aid the 1 Aussie diagnosed every 3 hours

with Young Onset Parkinson’s Disease

EXPERTS

Dr Paul Silberstein

 

 

Dr Fiona Kerr

 

Mr Joep van Agteren

 

 

Mr Matthew Iasiello

 

Specialist Movement Disorder Neurologist & member of The Young Onset Parkinson’s eXchange (YOP-X), SYDNEY

 

Founder & CEO, The NeuroTech Institute & member of YOP-X project working party, ADELAIDE

 

Research Lead, Wellbeing & Resilience Centre, South Australian Health & Medical Research Institute (SAHMRI), & member of YOP-X project working party, ADELAIDE

Researcher, Wellbeing & Resilience Centre, South Australian Health & Medical Research Institute (SAHMRI) & member of the YOP-X project working party, ADELAIDE

ADVOCACY GROUP REPRESENTATIVE 

More than 20,000 young Aussies (under 50 years of age) living with an incurable movement disorder1,2 are set to benefit from the launch of an Australian-first digital support tomorrow (Thursday, April 8, 2021), ahead of World Parkinson’s Day (Sunday, April 11, 2021). 


Developed as a ‘living lab’ model, the Young Onset Parkinson’s Exchange (YOP-X) is a free-to-download app and resource hub uniquely shaped by the first-hand knowledge and experiences of Australians living with Young Onset Parkinson’s Disease (YOPD).

 
Available to patients, their primary support people (carers), healthcare professionals and NDIS-contracted providers, the YOP-X app can be downloaded from the App Store or Google Play from tomorrow.  


The one in five people who experience symptoms of Parkinson’s Disease before  50 years of age, are classified as living with YOPD.2 Over the past decade,  the incidence of YOPD has increased by 40 per cent, with one Australian diagnosed every three hours.1-3 

 

YOPD patients face both debilitating motor impairment and non-motor symptoms, including anxiety, depression, apathy and sleep disorders, that can substantially compromise their quality of life.4 

 

To learn how the YOP-X digital platform can support YOPD patients to make changes to their career, relationships, sleep, physical ability and mental health, tee up an interview with a spokesperson below.

Ms Olivia Nassaris   

Executive Director & Board Member, Parkinson’s SA&NT (PSANT), ADELAIDE

AUSTRALIANS LIVING WITH YOUNG ONSET PARKINSON’S DISEASE (YOPD)

Karyn, 49

Todd, 39

 

 

Sandra, 47

 

Michael, 54

Geoff, 64

 

Raymond, 56

 

Mother-to-two diagnosed with YOPD at 39 years of age, ORANGE, NSW 

Father-to-two & former school principal recently diagnosed with YOPD, ADELAIDE

 

Mother-to-three diagnosed with YOPD at 45 years of age, ADELAIDE

Blogger & father-to-two diagnosed with YOPD just before his 50th birthday, ADELAIDE

 

Husband & father-to-three diagnosed with YOPD at 50 years of age, MELBOURNE 

Diagnosed with YOPD at 45 years of age, after experiencing symptoms for five years, PERTH 

ends#


MEDIA INTERVIEWS       Mike Worsman, Give Media

& ENQUIRIES:                   T 0414 248 072 | E mike.worsman@gmail.com  

 

BROADCAST VISION:      Available for download – https://vimeo.com/533780471 

References

  1. Shake it Up Australia Foundation. About Parkinson's. [cited March 2021]; Available from: https://shakeitup.org.au/understanding-parkinsons/.

  2. Parkinson's Australia. Young Onset Parkinson's. [cited March 2021]; Available from: https://www.parkinsons.org.au/young-onset-parkinson-s.

  3. Deloitte. Living with Parkinson's Disease - Challenges and positive steps for the future. 2011 [cited March 2021]; Available from: https://www2.deloitte.com/au/en/pages/economics/articles/living-with-parkinsons-disease.html.

  4. Parkinson's Australia. About Parkinson's. [cited March 2021]; Available from: https://www.parkinsons.org.au/about-parkinsons.